We
are so proud to support such a wonderful organization, an organization that has
supported our family (and continues to support us) through one of our most
trialing journeys. CHOC is an
organization that holds a very near and dear place in our hearts.
Since
this is a relatively new blog allow me to fill you in on Ella’s background and
our relationship with CHOC:
When
Ella was about one month little we were told that our baby had tested positive
for Cystic Fibrosis (CF). We were
immediately put in contact with CHOC and assigned to a case-worker within their
Pulmonary Clinic. After our first
appointment and a few tests later, Ella received a diagnosis of: Cystic Fibrosis Metabolic Syndrome
(CFMS). What does that mean? Well, it means that she has genetic
mutations on both CF genes, but currently shows no signs of the disease (and
may never). Her specific mutations
are extremely rare, which also means
that we still have a lot of questions-- Making CHOC our go-to place for any of
those questions. For 17-months the
Pulmonary team at CHOC has provided our family with an amazing support
system. We are, and will forever
be, thankful to them for all that they have done for our little family.
And
that is why we know this is a cause worth supporting!
So,
on that note, please join our family and team Ella Kate Daily at the 2013 CHOC Walk.
All team registrations, sponsorships and donations go directly to the
CHOC Foundation.
You
can read more about our journey with CHOC in older blog posts at: A Daily Home
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